Sunday 7 September 2014

WORLD DUCHENNE AWARENESS DAY

This is the first WORLD DUCHENNE AWARENESS DAY and September being the month set  aside to create awareness about muscular dystrophy, it our duty at Mudak to continue with our work of creating awareness.

Duchenne. The most common form of muscular dystrophy in children,
Duchenne muscular dystrophy affects only males. 
It appears between the ages of 2 and 6. Difficulties may arise during diagnosis especially where there is no family history.
 There is usually delay in growth the first steps of a child with DMD may occur at around 18 months.
 A boy with DMD may fall frequently and often has difficulty climbing stairs, jumping, running and may also develop a waddling gait. 

With the current breakthroughs in research, there is light beyond the tunnel and cure is in the horizon. Muscular dystrophy is a challenge to the whole family because each family member is affected in one way  or the other.

In Kenya hopefully things will change for the better for all living with muscular dystrophy. Young boys with duchenne need specialized care so that their lifespan can be increased.
This day should not go to waste....  

The Duchenne Timeline- WORLD DUCHENNEAWARENESS DAY